What Drives Nonprofit Clinical Research CEO & Founders?

• •building new tools for scientific observationNew
• •establishing a dedicated burn unit to reduce 80% pediatric burn mortality to 20%
• •building better policy with equity baked into it
• •help entrepreneurs go farther and faster
• •building a high-performing, global network for medtech

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• •integrating ai/ml models into existing workflows
• •communication issues within large projects and teamsNew
• •getting people to agree on healthcare problems and solutions
• •misinformation making it challenging to get right messages out
• •we speak the language of biology 'with an incredibly thick accent'

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• •curriculum directly with people with lived and living experience
• •medical history (as a predictor in models)
• •reducing risk of passing pkd from 50% to virtually nothing
• •usability: docking into ehr vs. new portal
• •evidence to support performance claims (e.g., reduce admin time by 20%)

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• •data-backed advocacy: using data to amplify people's voices and show where disparities occur
• •dime seal framework: evaluates digital health products for quality and trustworthiness
• •equity lens: always approach problems and solutions with a critical intersectional equity perspective, rejecting solutions without it
• •prioritizing internal focus: not discussing self-injury until later in a 6-week programNew
• •keeping patrick's special spirit alive - aimed at creating a lasting legacy in his memory

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• •startups receiving generic local economic development focus
• •avoidance of difficult emotions (through work, social media, drugs, alcohol)
• •people with agency telling others not to do things
• •not connecting with those you hire
• •diagnostic manuals not recognizing diverse cultural syndromes

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